Resources

Center Collaborators

Arkansas Children's Hospital
This link gives information regarding current medical services, community programs, hospital news and medical breakthroughs.

Arkansas Children's Hospital Research Institute
Research is the main focus of this Arkansas Center collaborator by promoting a research environment that fosters quality applied, basic, and clinical research projects.

Arkansas Department of Health
This site provides links to various sites including Moms and Kids, Healthy You, Your Environment. A Kids Corner link is also offered that provides fun and educational information for children.

University of Arkansas for Medical Sciences 
This resource focuses on Arkansas' only medical school.  It also includes links to various departments  including the Library, academic and research programs, patient services and public education/outreach.

Birth Defects Research and Prevention Information

March of Dimes

This site presents information on this non-profit organization's fight against  birth defects.

National Birth Defects Research and Prevention Network
This web site focuses on current birth defects surveillance, research, and prevention in the United States. Sections include NBDPN news, other birth defects news and information, related web site links and newsletters and publications.

International Clearinghouse for Birth Defects Monitoring System
This web site focuses on current birth defects research throughout the world. Sections include birth defects (congenital malformations) prevention, reports and papers, and birth defects web site links.

Arkansas Folic Acid Coalition
This web site features information on the Coalition, whose purpose is to educate Arkansans about the importance of folic acid in the prevention of neural tube defects. Sections include information about the  Coalition, Arkansas statistics, and foods containing folate/folic acid.

Birth Defects Databases

University of Kansas Medical Center Medical Genetics 

An alphabetical list of birth defects and genetic conditions for individuals, educators and health care professionals is included in this web site.  Sections include national and international organizations, specific categories and conditions, genetic counselors and clinical geneticists, support groups and Internet links for children, teenagers and young adults.

The Pediatrics Database

This web site provides an alphabetical list of over 550 childhood illnesses including genetic diseases and birth defects. Database information has been obtained through several sources including pediatric textbooks, journal articles, and review articles.

Family Support Groups and Information

Family Village

This web site furnishes resources, information, and Internet communication  opportunities for persons with cognitive and other disabilities, for their families and for the professionals who provide services and support to these individuals. Sections include health  issues, adaptive recreational activities and adaptive technology and  products and disability-related media and literature.

Directory of Genetic Support Groups Sites

National genetic support groups are listed on this site in alphabetical order  based on disease/condition. It also features Internet links to other national support groups directories and other informational sites.

SMILES

This web site features a cleft lip and palate support group called SMILES. The group is comprised of families whose children have or have had cleft lip, cleft palate and craniofacial deformities. Sections  include an overview of cleft lip and cleft palate management, language  and speech development, genetics and patient care after cleft palate repairs.

Children's Health Information Network--Congenital Hearts 

Patient and family resources and information about acquired and congenital heart disease (CHD) are provided on this site.  There is also information for the  health care professionals who care for these individuals.  Sections include  available support groups, educational materials, and Internet links designed for families, adults with CHD, nurses, and other health care professionals.